Associate Member Charities

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#3000 (CI) Community Health Charities of New England
30 Laurel Street
Hartford CT
Phone: 860-951-5933
Fax: 860-951-5961
Website: www.chcofne.org
President: Kevin E. Canavan

#3022 (CI) ALS Association, Connecticut Chapter
4 Oxford Road , Unit D1-2
Milford , CT  06460
Phone: (203) 874-5050
Fax: (203) 874-7070
Email:  lauren@alsact.org
Website:  www.ALSACT.org
Lauren D’Alessandro, Executive Director

This health organization is dedicated solely to the fight against Amyotrophic Lateral Sclerosis (Lou Gehrig’s disease).  It supports research and provides support to patients and families. 

#3018 (CI) Alzheimer’s Association, Connecticut Chapter
279 New Britain Road, Suite 5
Kennsington, CT  06037
Phone: 1-800-356-5502 or (860) 828-2828
Fax: (860) 828-2417
Email:  patricia.clark@alz.org
Website:  www.alzct.org
Patricia Clark, Executive Director

The Alzheimer’s Association provides assistance and support to patients and families living with Alzheimer’s disease, increases public awareness of the disease and supports research to find a cure. 

#3001 (CI) American Cancer Society
538 Preston Avenue
Meriden , CT  06450
Phone: 1-800-492-7161 or (203) 379-4700
Fax: (203) 379-5052
Email: john.weber@cancer.org
Website: www.cancer.org
John Weber, Sr. Vice President of Development

The American Cancer Society is dedicated to eliminating cancer through prevention, saving lives and diminishing suffering through research, education, advocacy and service.

#3002 (CI) American Diabetes Association
306 Industrial Park Road . #105
Middletown , CT  06457
Phone: 888-342-2383
Fax: (203) 632-5098
Email: rsmith@diabetes.org
Website: www.diabetes.org
Robert Smith, Executive Director

The American Diabetes Association conducts caring programs and provides advocacy for people with diabetes and funds research to find a cure. 

#3003 (CI) American Heart Association
Five Brookside Drive
Wallingford , CT  06492
Phone: 1-800-242-8721 or (203) 294-0088
Fax: (203) 294-3577
Email: jmclaughlin@heart.org
Website: www.americanheart.org
Joanne McLaughlin, Chief Operations Officer

The American Heart Association reduces disability and death from cardiovascular diseases and stroke through research, education and community services throughout Connecticut.

#3515 American Liver Foundation, Connecticut Chapter
127 Washington Avenue
North Haven , CT  06473
Phone: (203) 234-2022
Fax: (203) 234-1386
Email: jthompson@liverfoundation.org
Website: http://www.ctalf.org
JoAnn Thompson, Executive Director

We are the only national voluntary health organization dedicated to preventing, treating and curing hepatitis and other liver diseases through research, education and advocacy.

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#3004 (CI) American Lung Association of Connecticut, Inc.
45 Ash Street
East Hartford , CT  06108
Phone: 1-800-LUNG-USA or (860) 289-5401
Fax: (860) 289-5405
Email: jzinn@alact.org
Website: www.alact.org
John Zinn, Executive Director

The American Lung Association’s mission is the prevention and control of lung disease. Program priorities are prevention, public education, research, advocacy and direct services to adults and children throughout Connecticut.

#3005 (CI) Arthritis Foundation
35 Cold Spring Road, Suite 411
Rocky Hill, CT  06067
Phone: 1-800-541-8350 or (860) 563-1177
Fax: (860) 563-6018
Email: sevangel@arthritis.org
Website: www.arthritis.org
Steve Evangelista, Chapter President / Executive Director

The Arthritis Foundation supports research and provides education, exercise, support and advocacy services to improve the quality of life for people with arthritis.

#3007 (CI) Brain Injury Association of Connecticut
333 East River Drive, Suite 106
East Hartford, CT  06108
Phone: (860) 721-8111
Fax: (860) 721-9008
Email: julie@biact.org
Website: www.biact.org
Julie Peters, Executive Director

Provides advocacy, information and support for 60,000 Connecticut residents with brain injuries and their families. Services include: support groups, newsletters, recreational opportunities and prevention education. 

#3511 Cancer Research Institute
One Exchange Plaza
55 Broadway, Suite 1802
New York, NY 10006
Phone: 212-688-7515
Fax: 212-832-9376
Email: alfredm@cancerresearch.org
Website: www.cancerresearch.org
Alfred Massidas, Controller & General Manager

The Cancer Research Institute supports research to increase understanding of the immune system with the goal of developing methods for prevention and treatment of cancer.

#3021 (CI) Connecticut Hospice Institute
100 Double Beach Road
Branford , CT  06405
Phone: (203) 315-7600
Fax: (203) 315-7601
Email: dgoldfarb@hospice.com
Website: www.hospice.com
David Goldfarb, Regional Vice President

The Institute provides professional education programs, literature, publications and technical assistance about hospice and palliative care to medical professionals and families and conducts research on the treatment and care of terminally ill patients and families.

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#3513 (CI) Crohn’s and Colitis Foundation
P.O. Box 185431
Hamden, CT 06518
Phone: (203) 393-8964
Email: sallyconnolly@sbcglobal.net
Website: www.ccfa.org 
Sally Connolly, Executive Director

CCFA’s mission is to cure and prevent Crohn’s disease and ulcerative colitis through research and to improve the quality of life of children and adults affected by these digestive conditions through education and support.

#3008 (CI) Cystic Fibrosis Foundation
185 Silas Deane Highway
Wethersfield , CT  06109
Phone: (860) 257-6907
Fax: (860) 257-6903
Email: pamodio@cff.org
Website: www.cff.org
Pam Amodio, Executive Director

The Cystic Fibrosis Foundation supports innovative research to cure cystic fibrosis and provides specialized medical care through a nationwide network of Connecticut care centers, pharmacies and other patient services. 

#5369 (CI) Easter Seals Connecticut
24 Stott Avenue
Norwich, CT 06360
Phone: (860) 228-9438
Fax: (860) 859-4157
Email: jquinn@eastersealsct.org
Website: www.eastersealsct.org
John Quinn, President & CEO

Easter Seals Camp Hemlocks provides weeklong and weekend respite and recreational therapy in an inclusive barrier-free setting. Respite camping for children and adults with brain injuries, spinal cord injuries, cerebral palsy, spinal bifida, neurological disorders, seizure disorders, arthritis, sensory impairments and developmental disabilities. 

#3009 (CI) Easter Seals Greater Hartford Rehabilitation Center, Inc.
100 Deerfield Road
Windsor , CT  06095
Phone: (860) 714-9500
Fax: (860) 714-8979
Email: agouse@eastersealshartford.org
Website: www.hartford.easterseals.com
Allen S. Gouse, Ph.D., Executive Director

The Rehabilitation Center provides comprehensive medical rehabilitation and vocational services to enhance physical functioning, independent living skills and productive employment for children and adults with multiple disabilities.

#3506 (CI) Juvenile Diabetes Research Foundation North Central CT – Western MA Chapter
20 Batterson Park Road, 3rd Floor
Farmington, CT 06032
Phone: (860) 470-0020
Fax: (860) 674-0880
Email: mslomski@jdrf.org
Website: www.jdrf.org
Mary Ann Slomski, Executive Director

The Juvenile Diabetes Research Foundation (JDRF) is the only major diabetes organization focused exclusively on research to find a cure. Through its research funding, JDRF has been instrumental in establishing a focus on the needs of all people with diabetes, and the devastating complications that result from both type1 and type 2 diabetes.

#3010 (CI) Leukemia & Lymphoma Society, Connecticut Chapter
300 Research Parkway, Suite 310
Meriden , CT  06450
Phone: (203) 379-0445
Fax: (203) 379-0451
Email: kimball@leukemia-lymphoma.org
Website: www.leukemia-lymphoma.org
James Kimball, Executive Director

Your gift supports the Leukemia & Lymphoma Society’s mission to cure leukemia, lymphoma, Hodgkin’s disease and myeloma and to improve the quality of life for patients and their families. 

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#3011 (CI) March of Dimes, Connecticut Chapter
867 Main Street
Manchester, CT 06040
Phone: 860-812-0080
Fax: (860) 812-0079
Email: jfronckowiak@marchofdimes.com
Website: www.marchofdimes.com/connecticut
Julie Fronckowiak, State Director

The March of Dimes provides public and professional health education; supports community programs and research to improve the health of babies by preventing birth defects and infant mortality.

#3012 (CI) Mental Health Association of Connecticut, Inc.
20-30 Beaver Road
Wethersfield , CT  06109
Phone: 1-800-842-1501 or (860) 529-1970
Fax: (860) 529-6833
Email: mental.health.assoc@snet.net
Website: www.mhact.org
Beverly Walton, President & Chief Executive Officer

The Mental Health Association provides residential, social and work services to adults with mental illness; advocacy, support groups, referrals and public education about mental illness and substance abuse.

#3013 (CI) Muscular Dystrophy Association
148 Eastern Blvd.
Glastonbury , CT  06033
Phone: (860) 633-4466
Fax: (860) 659-2583
Email: hartforddistrict@mdausa.org
Website: www.mdausa.org
Daniel Marquis, District Director

MDA fights 40 neuromuscular diseases through worldwide research, a nationwide network of clinics (3 in Connecticut) providing comprehensive medical services and far-reaching professionals and public health education. 

#3014 (CI) National Kidney Foundation of Connecticut, Inc.
2139 Silas Deane Highway, Suite 208
Rocky Hill, CT  06067
Phone: 1-800-441-1280 or (860) 257-3770
Fax: (860) 257-3429
Email: khathaway@kidneyct.org
Website: www.kidneyct.org
Kim Hathaway, Chief Executive Officer

The National Kidney Foundation of Connecticut provides patient and family education and support; conducts public and professional education; funds scientific research and promotes organ donation.

#3015 (CI) National Multiple Sclerosis Society, Greater Connecticut Chapter
659 Tower Avenue, First Floor
Hartford, CT 06112
Phone: 860-714-2300
Fax: (860) 714-2301
E-mail: lgerrol@ctnmss.org
Website: www.msswct.org
Lisa Gerrol, President

The National MS Society is dedicated to ending the devastating effects of MS by providing local programs and funding research to find the cause, new treatments and a cure for MS. Programs include: newly diagnosed workshops, support groups, counseling, advocacy, family programs, respite, wellness, durable medical equipment, professional education and more.

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#3006 (CI) Prevent Blindness Tri-State
984 Southford Road
Middlebury , CT  06762
Phone: (203) 598-0529
Fax:  (203) 598-0584
Email: kgayars@preventblindnessct.org
Website: www.preventblindness.org/ct
Kathryn Garre-Ayars, Executive Director & Chief Executive Officer

Prevent Blindness Connecticut is dedicated to saving sight through prevention, public and professional education, eye safety activities for industry, research and eye screenings to detect early eye diseases and conditions leading to blindness in children and adults.

#3024 (CI) Special Olympics Connecticut, Inc.
2666 State Street
Suite 1
Hamden , CT  06517
Phone: 1-800-443-6105 or (203) 230-1201
Fax: (203) 230-1202
Email: beaud@soct.org
Website: www.soct.org
Robert Doherty, President

Special Olympics provides year-round sports training and athletic competition in a variety of Olympic-type sports for individuals with mental retardation. Additionally, Special Olympics offers a “Healthy Athletes” program that provides screening and examination in such areas as vision, dental and nutrition.

#3017 (CI) United Cerebral Palsy Association of Southern Connecticut
94-96 South Turnpike Rd
Wallingford , CT 06492
Phone: (203) 269-3511
Fax: (203) 269-7411
Email: ucpasouthernct@yahoo.com
Website: www.ucpasouthernct.org
Maureen Linderfelt, Executive Director

Provides direct services that empower persons with disabilities. Services include recreation, sports, summer residential camp, transportation, social services, respite, rehabilitative day programs and vocational services.

Community Health Charities of Connecticut

Associate Member Charities

#3645 ALSAC/St. Jude Children's Research Hospital
1 Bridge Street, Suite 102
Newton, MA 02458
Phone: 617-965-5262
Fax: 617-969-4480
Email: debra.sharpe@stjude.org
Website: www.stjude.org
Debra Sharpe, Regional Director

#3505 American Foundation for AIDS Research (amfAR)
New York , NY  10005
Phone: 1-800-39AmfAR or (703) 730-1602
Fax: (703) 730-1642
Email: karen.cress@amfar.org
Website: www.amfar.org
Karen Cress, Manager, Special Projects

amfAR supports cutting edge research on HIV/AIDS treatments, vaccines and a cure and provides the latest treatment information to patients and physicians and prevention information to the public. 

#AG3232 American Kidney Fund
265 Spagnoli Road
Suite 2
Melville, NY  11747
Phone: 516-336-8530
Fax: 631-470-4792
Email: ddavidson@kidneyfund.org
Website: www.kidneyfund.org
Doug Davidson, Northeast Regional Director

The American Kidney Fund is our nation's #1 source of direct financial assistance to kidney patients, and is a leader in providing education to those with and at risk for kidney disease.

#3516 American Parkinson Disease Association, Connecticut Chapter
27 Allendale Drive
North Haven , CT 06473
Phone: (203) 288-0546
Fax: 203-288-0546 (call first)
Email: gladkt@hotmail.com
Website: www.ctapda.com
Gladys Tiedemann, President

American Parkinson Disease Association is affiliated with the state’s Information and Referral Center. Services include: telephone assistance, educational materials, lectures, fundraising activities and a support group network.

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#AG9212 Autism Speaks
2 Park Avenue
11^th Floor
New York, New York 10016
Phone: 212-252-8584
Fax: 212-252-8676
Website: www.autismspeaks.org
Mark Roithmayr, President

At Autism Speaks, their goal is to change the future for all who struggle with autism spectrum disorders.

#3507 Children’s Tumor Foundation
75 Mc Neil Way - Suite 310
Dedham, MA 02026
Phone: 508 - 879 - 5638
Fax: 781 - 326 - 4940
Email: seburne@ctf.org
Website: www.nf.org
Samantha Eburne, Vice President of New England Development

The National NF Foundation provides information and support to patients affected by this progressive neurological disorder and promotes public and physician awareness and supports research to the New England Region of the National Neurofibromatosis Foundation.

#3517 CT Chronic Fatigue Immune Dysfunction Syndrome & Fibromyalgia Association 
(CT CFIDS & FM Association)
23 Nichols Road
Wolcott, CT 06716
Phone: (203) 879-3587
Email: ellen@ct-cfids-fm.org
Website:  www.ct-cfids-fm.org
Ellen Schmeer, Membership Chair

Connecticut Chronic Fatigue and Immune Dysfunction Syndrome and Fibromyalgia Association, Inc. offers advocacy, education to patients and healthcare professionals, research funding, quarterly newsletters, and referrals.

#AG9016 Connecticut Oral Health Initiative
175 Main Street
Hartford, CT  06106
Phone: 860-246-2644
Fax: 860-246-7744
Email: martym@ctoralhealth.org
Website: www.ctoralhealth.org
Marty Milkovic, Executive Director

Through advocacy, coalition building, and education, the Connecticut Oral Health Initiative (COHI) creates a public conscience that results in access to oral health care for all.

#3019 (CI) Epilepsy Foundation of Connecticut, Inc.
386 Main Street
Middletown , CT  06457
Phone: 1-800-899-3745 or (860) 346-1924
Fax: (860) 346-1928
Email: lawefct@aol.com
Website: www.epilepsyct.net
Linda Wallace, Executive Director

The Epilepsy Foundation is a statewide organization that helps people with epilepsy understand and cope successfully with their disorder and furthers public understanding to increase acceptance of people with epilepsy. 

#3520 Lea’s Foundation for Leukemia Research
150 Trumbull Street
2^nd Floor
Hartford, CT  06103
Phone: 860-727-8998
Email: jjnltn@ntplx.net
Website: www.leasfoundation.org
John Namnoum, President

Since 1998 when Lea’s Foundation for Leukemia Research, Inc. was established, its focus and mission continues to be to fund worthwhile research projects that will help find a cure for leukemia, lymphoma, Hodgkin’s Lymphoma and myeloma.

#3503 (CI) Lupus Foundation of America, Connecticut Chapter
97 South Street
Suite 110
West Hartford , CT  06110
Phone: 1-800-699-6967 or (860) 953-0387
Fax: (860) 953-0483
E-mail:  ctlfe@sbcglobal.net
Website:  www.lupusct.org
Ceil Scheidel, Executive Director

The Lupus Foundation provides awareness, education and support for people with lupus, families and caregivers fighting this chronic inflammatory disease and supports valuable research efforts.

#3020 (CI) Lyme Disease Foundation, Inc.
384-Z Merrow Road
P. O. Box 332
Tolland , CT 06084
Phone: (860) 870-0070
Fax: (860) 870-0080
Email: ldftf@aol.com
Website: www.lyme.org
Tom Forschner, Executive Director

The Lyme Disease Foundation provides critical information about tick-borne disease prevention, improves healthcare, and funds research for solutions. Thousands of children, adults and professionals are assisted in Connecticut and worldwide.

#3016 (CI) Sickle Cell Disease Association of America, Connecticut Chapter, Inc.
140 Woodland Street
Suite 102
Hartford , CT  06105
Phone: (860) 527-0147
Fax: (860) 548-0220
Email: ceclia_a_peppers@hud.gov
Website: www.sicklecellct.org
Cecelia Peppers Johnson, Board of Directors Chair

Professionals work with patients and communities throughout Connecticut providing counseling, support, education and information to sickle cell patients and their families, as well as those belonging to at risk groups, professionals and the general public.

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